Wednesday, February 23, 2011

Barry Pankhurst - Cultural Differences in Alzheimer's Disease

What would you feel if a doctor diagnosed you with Alzheimer's Disease, then before leaving the room laid his hands on your head as he prayed for you?

What would you think if, when returning home you found that everyone around you including your wife and family thought the Alzheimer's meant you had been possessed?

What would you do when you then found yourself completely and utterly alone in your disease because of misinformation, fear and strange beliefs?

If you're like Barry Pankhurst, you'd do the only thing there was left to do... get on your computer and connect with other patients and advocates throughout the world.  You'd become so fueled with passion about de-bunking these myths and supporting patients and caregivers that you'd team up with others to produce and promote videos and slide shows depicting what it is like to live a life with Alzheimer's Disease.  You'd become active online in communities sharing your experiences artistically with these videos and with poetry that illuminated the experience of being an Alzheimer's patient.

My new friend Barry is in every way the consummate gentleman.  Heralding from England, he met and married his beautiful wife in Indonesia where he lived the quiet life of a master baker and confectioner.  When he began to notice changes he recognized from other members of his family, he sought help from a doctor.  This was when his and his family's lives became irrevocably changed forever.

I'd love to share Barry's video with you as he shares the details of his experience in his own words and with photos that let you get to know the man behind the smooth, perfectly cadenced and practiced voice.


This is a video that definitely goes onto my list of favorites to share with others.  I can't imagine anyone watching it without being changed...

Thank you Barry!

You can find Barry Pankhurst here:

++ Facebook
++ Facebook group Memory People
++ His own website at
++ Alzheimer' forum
++ OutsiderArtist
Comment by Barry Pankhurst on February 24, 2011 at 2:45pm
And thank you Ellen for the extremely profound introduction that makes me fell very humble   

Comment by Ellen S on February 24, 2011 at 8:14pm
Barry, the truth is that you are every bit of my description and more. I feel very privileged to know you and very much look forward to getting to know you better with time. You really know what you're talking about and I very much look forward to learning from you. You are a vital part of the Alzheimer's community and therefore an important part of WEGO Health as we connect and network with the movers and the shakers of this global concern. You honor me, and I thank you my friend...

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