I am headed to Capitol Hill.
I will be participating in Headache on the Hill
(HOH) which is an initiative of the Alliance for Headache Disorders
Advocacy. The dates for this are May 31 and June 1, 2011. HOH is being
held in conjunction with the 53rd Annual Scientific Meeting of the
American Headache Society and what was National Headache Awareness Month
that has been since designated instead as National Migraine Awareness
Month - June.
What a privilege to be asked, but what a responsibility.
I decided to keep a journal, so others in
the future who are interested in participating in HOH or similar
activities might get a feel for what the experience is like. Hopefully
familiarity with my experience will lead to more and more Health
Activists and patients taking similar action and participating in such
activities that will benefit patients as a whole. I don't know about
others, but I always feel a little more secure when I have a clue what
After being asked, I have been awaiting
contact from the AHDA and the NHF for further instructions, some of
which I received yesterday.
The AHDA is presenting a webinar on Tuesday
that will help to prepare those of us who are rookies for the
experience ahead. Participation is optional, but it is an Issues
Briefing and Advocacy Training Session for participants, so I really
hope to be able to do it. Goodness knows I need all the prep time I can
Hopefully I will
get information about flights and other reservations by tomorrow,
otherwise I'll give them a reminder call and see if we can make some
headway there. The date is very quickly approaching, and most flights
I've been able to find have only one or two seats left, so I'm anxious
to get that out of the way.
I am hoping to be
able to fly in a day early as flying often triggers a nice Migraine
attack, but we'll see how that goes. Flying out for home seems to be my
trouble spot, as right now I see no way to make it home the same day I
need to. There are only so many connecting flights without me having to
drive half the night to get back home. Aaah, the disadvantages of
living in the middle of nowhere.
I'll update when I have more information. Stay tuned!
“Migraine is not a 1 or 0 thing”
2 days ago